The best part of my day was seeing this girl. She was the first child we met after Tyler was diagnosed. She was 2 years old and had just relapsed for the 3rd time and was heading for her 2nd bone marrow transplant. Her mom isn't on facebook and doesn't keep up with her caringbridge much, so I've been wondering for the last 2 years if this girl was alive. She was the cutest thing and loved Tyler. They'd giggle at eachother and he was "her" baby. It was very surprising when I saw her mom today! She never relapsed again and is a happy, healthy 5 year old! Amazing.
I found this on facebook and it's so true! Thank you for reading and wanting to understand. It means a lot.
I need to talk about my loss.
I may often need to tell you what happened-
... or to ask you why it happened.
Each time I discuss my loss, I am helping myself
face reality of the death of my loved one.
I need to know that you care about me.
I need to feel your touch, your hugs.
I need you just to be with me (and I need to be with you).
I need to know you believe in me and in my
ability to get through my grief in my own way
(and in my own time)
Please don't judge me now -
or think that I'm behaving strangely.
Remember I'm grieving.
I may even be in shock.
I may feel afraid. I may feel deep rage.
I may even feel guilty. But above all, I hurt.
I'm experiencing pain unlike any I've ever felt before.
Don't worry if you think I'm getting better
and then suddenly I seem to slip backward.
Grief makes me behave this way at times.
And please don't tell me you "Know how I feel",
or that it's time for me to get on with my life.
(I am probably already saying this to myself).
What I need now is time to grieve and to recover.
Most of all, thank you for being my friend.
Thank you for your patience.
Thank you for your caring.
Thank you for helping, and understanding.
Thank you for praying for me.
And remember, in the days or years ahead,
After your loss - when you need me
as I needed you - I will understand.
And then I will come and be with you.