Friday, September 14, 2012

I Hope

I hope you never have to hear the words “Your child has cancer”.

I hope you never have to hear “The prognosis is not good”.

I hope you never have to watch your child prepare to undergo
chemo, have a “port” surgically implanted in their chest, be connected to an IV pole, look at you with fear in their eyes and say, “Don’t worry Mom, it’s going to be okay.”
 
 
I hope you never have to hold your child while they vomit green bile.I hope you never have to feed them ice chips for lunch.
 

 I hope you never have to watch the “cure” you pray for slowly take
away your child’s identity, as they, lose their hair, become skeletal, develop severe acne, become barely able to walk or move, and look at you with hope in their eyes and say, “It’s going to be okay Mom.”
 
 I hope you never have to stay in the hospital for weeks at a time, where there is no privacy, sleeping on a slab, your face to the wall, where you cry in muffled silence.

 

 I hope you never have to see a mother, alone, huddled in a dark hospital corridor crying quietly, after just being told “there’s nothing more we can do”.

I hope you never have to watch a family wandering aimlessly, minutes after their child’s body has been removed.

I hope you never have to use every bit of energy you have left, with all of this going on around you to remain positive, and the feelings of guilt, sorrow, hope, and fear overwhelm you.

I hope you never have to see your child’s head bolted to a table while they receive radiation.

I hope you never know what it is like to take you child home,
(grateful but so afraid) in a wheelchair because the chemo has damaged their muscles, 35 pounds lighter, pale, bald, and scarred, And they look at you with faith in their eyes and say, “It’s going to be okay Mom.”

I hope you never have to face the few friends that have stuck by you and hear them say, “Thank God it’s all over” because you know it will never be over.

 Your life becomes a whirl of doctors, blood tests, and MRI’s, and you try to get your life back to normal while living in mind-numbing fear that any one of these tests could result in hearing the dreaded words “The cancer has returned”.

And your friends become even fewer.

I hope you never have to experience any of these things. Because only then will you understand.

Carol Baan
March 12, 2003
 
 
I would also like to add a few of my own.
 
I hope you never have to make the decision to end your child's life, while wondering if that miracle is around the corner.
 
 I hope you never have to watch your child struggle to wake up, as the Drs add more medicine to keep them down so they don't feel the intense pain.
 
I hope you never have to explain to a sibling that his best bud is not going to be with us anymore.
 
THANK YOU!!! To everyone who helped us out. Who stuck around. Who listened to us when we needed an ear. Who respected our decisions. Who do not judge our grieving process. Who brought us gifts. Who mailed us cards. Who took their time to stop by and help out. Who came to see us in the most difficult setting. Who flew across the country to meet us and take priceless pictures of our family. Who helped us move back home and bring our things in. Who brought me things at the hospital when I was unable to leave. Who took Dawson in when we couldn't keep him with us. Who left her family to live with us in the cities and help out.
 
Who came over when I called and said I can't be alone today. Who braved calling, even when there was nothing to be said. Who set up benefits and donated. Who got a Cars tatoo in his honor. Who named their baby after him. Who shares his pictures. Who still mentions his name and shares stories I haven't heard before. Who still sends cards. Who chats until late hours and keeps me distracted from the quiet house. Who still cleans my house when she comes over. Who watches my kids so I can do something theraputic for myself. Who gives me a hug with no words necessary. Who invited me in, called me, came to see me, without even knowing me.
 
I will forever remember all the wonderful people who have been involved in this process. YOU are a part of his story, one I will never forget. Tyler has brought a lot of people together. If not for him I wouldn't know half the friends I have today. Thank you for being there, and sticking with us.

6 comments:

Pat vonHartmann said...

These precious friends and memories are Tyler's final gift to you - one that will remind all of us how many people he touched and brought together. Complete strangers united because of an awesome little boy. Hugs and love to all of you <3 !

Pat vonHartmann said...

These precious friends and memories are Tyler's final gift to you - one that will remind all of us how many people he touched and brought together. Complete strangers united because of an awesome little boy. Hugs and love to all of you <3 !

taunya hegyi said...

Hello Stephanie. You and I emailed a little bit last year right around Christmas and I just wanted to let you know that I still follow your posts on Facebook as well as your blog. I don't want you to think that people aren't still here, praying for you and your family. Keep adding pictures of that BRAVE little boy and please never think that people would ever wish you hadn't or would ever get sick of hearing about him!!! It is us who should THANK YOU for allowing us into your life and your journey. I am amazed at your strength and courage and hope you realize how many lives have been touched! You are a wonderful mom and your boys are blessed to have you!

Timeless_Distractions said...

You got me in tears but that's okay. :) You are an awesome mom so keep up the good work. I really do enjoy reading your blogs, and thanks for telling us Tyler's journey.

amanda thomas said...

you are very welcome hun still sit and read your page to see how your doing tyler is an angel of god and watching over you and your family even when you think hes gone he's not hes always in your heart

Donell Hill said...

Hi Stephanie,

Thank you for sharing this with us. I wanted to send you a personal email, but did not see any other way to contact you through your blog.

About two months ago, my mom was diagnosed with lung cancer, and the week before we found out, I was accepted into a cancer coaching certification program. As I've been going through the training, I've been trying to figure out who I wanted to work with, and it's parents whose children have cancer, which brought me to your blog.

One of me teacher's/mentor's daughter passed away a few years ago, so this is very close to my heart.

My mom's journey is just beginning, and I witnessed what my teacher went through for about 10 years, so I know how difficult and exhausting it can be. If you and/or your husband would ever like a complimentary gift session, please do not hesitate to email me (Cre8ingPeace@gmail.com)

Warm regards,
Donell Hill (Donnie)