He was happy to have visitors. We stayed for 4 hours on Friday and 2 hours Thursday evening. I didn't bring the boys on Thurs because I wanted to give her a break to go home and get some things she forgot.
We are stuck at home over Easter because of our respiratory infections. My mind has also been on last Easter. It was the day we packed up and headed to the cities. We stopped and did Easter at my Grandma's house on the way there, then continued to a hotel near Children's so we could be in town to get admitted in the morning. Being a year past the beginning of the end is causing more anxiety. So many memories and so many dates that will always stand out to us.
Our last year's Easter pics. Tyler cuddling with Daddy at bedtime. He looks so little!
Today at the ER I had an interesting experience. The pulse ox is a picky monitor sometimes. It has to be tight around the finger or toe to pick up a reading. Gabriel had it on for monitoring his oxygen level and heartrate. It was being picky and kept losing signal. I was happy to finally be told we could leave so we could take it off. I put Gabriel in the stroller and was packing up our other stuff. Suddenly the monitor started beeping again. Nobody was near it. It picked up a normal heartrate and 100% oxygen. After about 20 seconds it cut off. We walked out and saw a bald boy wearing the green cancer mask. It was hard seeing that reminder of our old life. I miss it. Mostly the little bald boy.
I got a text from a friend tonight who said she was talking to someone and out of the blue she said Tyler is ok. She had no clue where that came from or why she said it, but she just had to tell me. I found it ironic since the mysterious monitor this morning showed perfect stats. So I'm trying to concentrate on the fact that he is ok, and he will never suffer again. I just wish we didn't have to suffer so much missing him.