It's been a rollercoaster week. Seems to be the norm these days. I have great moments and depressing moments. Thankfully they are usually just moments, or most of a day, but not everyday. Writing helps me keep track of things and makes it more clear how I'm really doing, by thinking back and remembering these things.
Gabriel loves baths! He watches the tub fill.
These last few days have been tough. I've been on an Infant Leukemia facebook group since just after Tyler was diagnosed and they've been so supportive to me. Well now one of the kids that was diagnosed in 2010 and relapsed shortly after Tyler is having a tough time. She's 27 days past her transplant. She recently got pneumonia, coded and was revived and brought to the ICU where she's on a breathing machine. Seeing the picture of her, in the same setting Tyler was in, with such grim odds is so hard. I've always felt so bad for parents when they lose their child, but actually knowing what it feels like and having been there just makes it 100 times worse. I wish she was closer so I could go be with her as she sits around and hopes her daughter will make a tiny bit of progress today. If anyone wants to leave her a message, her caringbridge is http://www.caringbridge.org/visit/paxtenpearson.
Tomorrow I go back in to the Dr. I've had an infection for a while and it keeps coming back, or the meds don't quite get rid of it. Now I'm having other symptoms and I'm not sure if they could be related or not. I called my Dr today and he said to come in for an appt tomorrow. Hopefully it's not something serious. After dealing with cancer, it seems like even small symptoms you tend to jump to the worst conclusions. Maybe it's just stress doing weird things again. I know I have a lower immune system due to being stressed and grieving.
On Tuesday I did get back to skating. Took it slow and it went just fine. We mostly go to chat with friends anyway. My ankle is a little sore now and then, they did say it would be a little sore for quite a few months, but for the most part I can do many things now.
Dawson is really doing good with his therapists. He's getting the hang of things and is more cooperative with them. They've been working on some word pronunciation, matching and pairing objects and turn taking. He started eating Life cereal now and we find it amusing when he asks for "more wifes" instead of Life. Tonight he really took an interest in spelling. He was spelling his name out loud and then asked me to "spell mommy", so I told him and he asked me again, then repeated it himself. We also spelled Daddy, Gabriel and Run. He asked for Gabriel quite a few times. It's so exciting to see him wanting to learn.
Gabriel has been cruising furniture and really getting around. I'm thinking he'll be walking by his birthday! A WIC appt showed his Hemoglobin was low, so I'm going to see what the Dr wants to do with that tomorrow also. I'm hoping to get more labs for peace of mind. Lots of things to do and places to go tomorrow, so hopefully I'll have more energy and enthusiasm then I've had these past few days!